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Amyloidosis Sites
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1   Link   Amyloid Email Discussion Group
The Amyloid On-Line Support Group, with over 500 subscribers worldwide, hosted by the ACOR group. In our opinion the best email discussion group.
2   Link   Westmead (NSW) Amyloid Clinic Dates
This webpage is regularly updated with the latest dates for the Westmead (NSW) Amyloid Clinic. It also has more information about the clinic.
3   Link   Leukaemia Foundation Amyloidosis Newsletters
The QLD branch of the Leukaemia Foundation publishes a newsletter on amyloidosis 2 or 3 times per year. Scroll down the webpage and the newsletters for amyloidosis can be found on the right hand side. They also run support groups for Amyloidosis in some states, particularly QLD. Contact them for further details.
4   Link   The Adam Gardiner Foundation (Australian)
The Adam Gardiner Foundation's mission is to raise funds & awareness for Amyloidosis while working within the structure of Westmead Hospitals Immunology Department and its Institute for Immunology & Allergy Research (IIAR).
5   Link   Amyloidosis Foundation
The Amyloidosis Foundation (formerly the ASN) website (USA based). Also in Spanish. Their case histories section is legendary!
6   Link   Prof Philip Hawkins - profile
Clinical Director at the UK National Amyloidosis Centre
7   Link   UK National Amyloidosis Centre
8   Link   Mayo Amyloidosis Clinic (USA)
Mayo Clinic is one of a few medical centers in the United States studying the diagnosis and treatment of amyloidosis. Services for International Patients:
9   Link   Boston Amyloid Treatment & Research Program
This USA centre's goal is to evaluate and offer treatment to patients with amyloid diseases. They only treat USA based patients.
10   Link   Amyloidosis Research Foundation
This foundation has been established to secure funds for research to find the cause of amyloidosis and develop more effective means of diagnosis and treatment (USA based)
11   Link   Amyloidosis in Canada
The Canadian Amyloidosis Support Network
12   Link   Amyloidosis in France
13   Link   Amyloidosis in Finland
14   Link   Amyloidosis in Holland
Pages in both English & Dutch
15   Link   Amyloidosis in Germany
16   Link   Amyloidosis in Israel
In Hebrew. If you need more details on the Israeli Support Group and their website is down we can provide you with more information.
17   Link   Amyloidosis in Italy
The Pavia centre - some great information in Italian on this website. The director is Prof. Giampaolo Merlini.
18   Link   Amyloidosis in Portugal
Mainly on Familial/Hereditary Amyloidosis. This site has an English version.
19   Link   Amyloidosis in the United Kingdom
Registered as a charity in 1997, Myeloma UK is the only organisation dealing exclusively with myeloma and its related disorders in the UK. This link is to their information on AL Amyloidosis.
20   Link   The Teague Family Website (USA)
Sam & Jan Teague's (USA) personal journey with Amyloidosis
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