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Amyloid Email Discussion Group
The Amyloid On-Line Support Group, with over 500 subscribers worldwide, hosted by the ACOR group. In our opinion the best email discussion group.
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Westmead (NSW) Amyloid Clinic Dates
This webpage is regularly updated with the latest dates for the Westmead (NSW) Amyloid Clinic. It also has more information about the clinic.
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Leukaemia Foundation Amyloidosis Newsletters
The QLD branch of the Leukaemia Foundation publishes a newsletter on amyloidosis 2 or 3 times per year. Scroll down the webpage and the newsletters for amyloidosis can be found on the right hand side. They also run support groups for Amyloidosis in some states, particularly QLD. Contact them for further details.
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The Adam Gardiner Foundation (Australian)
The Adam Gardiner Foundation's mission is to raise funds & awareness for Amyloidosis while working within the structure of Westmead Hospitals Immunology Department and its Institute for Immunology & Allergy Research (IIAR).
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Amyloidosis Foundation
The Amyloidosis Foundation (formerly the ASN) website (USA based). Also in Spanish. Their case histories section is legendary!
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Prof Philip Hawkins - profile
Clinical Director at the UK National Amyloidosis Centre
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UK National Amyloidosis Centre
The NHS National Amyloidosis Centre is the only centre in the UK specialising in amyloidosis. The Centre has “state of the art” clinical and research facilities, and a team of highly qualified clinical, research and support staff.
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Mayo Amyloidosis Clinic (USA)
Mayo Clinic is one of a few medical centers in the United States studying the diagnosis and treatment of amyloidosis. Services for International Patients: http://www.mayoclinic.org/english/services.html
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Boston Amyloid Treatment & Research Program
This USA centre's goal is to evaluate and offer treatment to patients with amyloid diseases. They only treat USA based patients.
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Amyloidosis Research Foundation
This foundation has been established to secure funds for research to find the cause of amyloidosis and develop more effective means of diagnosis and treatment (USA based)
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Amyloidosis in Canada
The Canadian Amyloidosis Support Network
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Amyloidosis in France
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Amyloidosis in Finland
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Amyloidosis in Holland
Pages in both English & Dutch
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Amyloidosis in Germany
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Amyloidosis in Israel
In Hebrew. If you need more details on the Israeli Support Group and their website is down we can provide you with more information.
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Amyloidosis in Italy
The Pavia centre - some great information in Italian on this website. The director is Prof. Giampaolo Merlini.
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Amyloidosis in Portugal
Mainly on Familial/Hereditary Amyloidosis. This site has an English version.
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Amyloidosis in the United Kingdom
Registered as a charity in 1997, Myeloma UK is the only organisation dealing exclusively with myeloma and its related disorders in the UK. This link is to their information on AL Amyloidosis.
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The Teague Family Website (USA)
Sam & Jan Teague's (USA) personal journey with Amyloidosis
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