Here are some videos from Myeloma UK about AL (Primary) Amyloidosis which you may find useful.Â Myeloma UK has 48 videos including many on Multiple Myloma on YouTube.Â You can watch the Amyloidosis videos either here on this website or click on the url to view their collection at YouTube: http://www.youtube.com/profile?user=MyelomaUK#g/u
* Understanding AL Amyloidosis
Dr Julian Gillmore, Consultant Physician at the National Amyloidosis Centre, Royal Free Hospital in London gives a brief understanding of AL amyloidosis how it affects the body and how it can be diagnosed.
Dr Julian Gillmore and Dr Ashutosh Welchalekar, Consultant Physicians at the National Amyloidosis Centre at the Royal Free Hospital in London explains treatment options for patients with AL amyloidosis.
Dr Giampaolo Merlini, Professor of Clinical Biochemistry, University of Pavia Hospital, Italy. Dr Merlini talks to Myeloma UK at an AL amyloidosis Patient and Family Infoday. He shares his thoughts on the treatment of AL amyloidosis in the UK and gives his view on what the future holds for patients with AL amyloidosis.
AL amyloidosis patient Steffi Callan reveals her treatment history and why she made the decision to go to the USA for a stem cell transplant. She shares how being diagnosed with AL amyloidosis has impacted on her life and the measures she has taken to raise awareness of AL amyloidosis.
AL amyloidosis patient Ken Mantel recounts the symptoms he experienced prior to diagnosis. Ken gives in an insight on what to expect when patients visit the National Amyloidosis Centre at the Royal Free and shares how his AL amyloidosis has been treated.
Philip Owen has Multiple Myeloma, which some AL Amyloidosis patients may also have.Â He had an unsuccessful Stem Cell Transplant so was treated with Thalidomide and Revlimid.Â Philip talks about the problems he has had with a peripheral neuropathy affecting his feet.